Palliative care as an alternative to heart transplantation in patients with end-stage ACHD: Do standard approaches to palliative care in heart failure apply to young adults with CHD?

Presentation by: Sarah Goodlin, MD

Portland VA Medical Center Portland Oregon

Goodlin picSarah Goodlin, M.D. is chief of Geriatrics at the Portland VAMC and Associate Professor of Medicine at OHSU Goodlin has practiced geriatric medicine since 1987. While a faculty member at Dartmouth Medical School she was funded as a faculty scholar by the Project on Death in America from 1995-1998 to develop and implement improvement in care for the dying at the major teaching hospitals for Dartmouth Medical School. Goodlin also developed the New Hampshire End of Life Project, a two-year collaborative to improve end of life care and develop outcome measures for care of persons near the end of life.  She moved to Utah in 1998 and initiated quality improvement projects for care of the frail elderly and for persons with advanced heart failure. In 2002 and 2003 Goodlin directed two consensus conferences on Palliative and Supportive Care in Advanced Heart Failure, funded by the Agency for Healthcare Quality and the Robert Wood Johnson Foundation. Dr. Goodlin was a member of the Board of Directors of the American Academy of Hospice and Palliative Medicine 2003-2006, is a fellow of the AAHPM and of the American College of Cardiology.  Dr. Goodlin serves on the American College of Cardiology Foundation-American Heart Association Physician Consortium for Performance Improvement® Heart Failure Work Group, and is an expert committee member of the American Board of Internal Medicine Primary Palliative Care Practice Improvement Measure.

Columbus Team Based Approach Established Program

Presentation featuring:

StephenCrumbSteve Crumb, ACNP
Nationwide Children’s Hospital, Columbus Ohio

 

 

 

 

Jackson picJamie Jackson, PhD
Nationwide Children’s Hospital, Columbus, Ohio

 

 

 

 

Daniels picCurt Daniels, MD
Nationwide Children’s Hospital, Columbus, Ohio

 

 

 

 

sisk tracey picTracey Sisk RN, BSN
Nationwide Children’s Hospital, Columbus, Ohio

 

 

 


 

Cincinnati Team Based Approach Young Program

Presentation featuring:

Terry Faulkner DNP, RN
Cincinnati Children’s Hospital Medical Center
Laura Riley, MSN, RN, CNP
Cincinnati Children’s Hospital Medical Center

 
day karen picKaren Day MSN, RN
Cincinnati Children’s Hospital Medical Center

 

 
learn chris pic v2Christopher Learn, MD
Cincinnati Children’s Hospital Medical Center

 

 

 

Heart Failure in Congenital Heart Patients: Common Endpoint, Unique Pathophysiology, or Both?

Presentation by: Jeffrey A. Towbin, MD

Cincinnati Children’s Hospital Medical Center

Towbin High ResDr. Jeffrey A. Towbin, Executive Director of the Heart Institute and Professor & Chief, Pediatric Cardiology at Cincinnati Children’s Hospital Medical Center, did his Pediatric Residency at Children’s Hospital Medical Center before moving to Houston to do his Pediatric Cardiology Fellowship at Texas Children’s Hospital in 1985.  He joined the faculty of Baylor College of Medicine and Texas Children’s Hospital in July 1989 as an Assistant Professor of Pediatrics, and ultimately was promoted to the rank of tenured Professor (1998). Dr. Towbin relocated back to Cincinnati Children’s Hospital Medical Center in 2009. Dr. Towbin has published approximately 480 peer-reviewed publications, and over 70 book chapters, as well as editing 3 books.  He has been awarded many NIH grants with continuous funding over his career, and is the recipient of various other extramural grants, including several grants mentoring students and junior faculty.  Dr. Towbin has also received many honors nationally and internationally, including the Michael Debakey Excellence in Research Award, 2007 American College of Cardiology Distinguished Scientist Award (March 2007), and the 2013 American Heart Association Basic Science Prize. He has given over 30 named Lectureships as well as played leadership roles on many National and International Committees. He is a well-known expert in the clinical and translational arenas of Pediatric Cardiomyopathy, Heart Failure, transplantation, and causes of sudden death.