Fontan Considerations II (put Fontan I and II together in sequence)

The Australia/New Zealand Fontan Registry
Presented by David Celermajer, MBBS, MSc, PhD, DSc, FAHA, FRACP, FAA
The University of Sydney
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David Celermajer is the Scandrett Professor of Cardiology at The University of Sydney and Director of Echocardiography in the Cardiology Department at Royal Prince Alfred Hospital, as well as Staff Cardiologist at the Children’s Hospital in Westmead. He has been Group Leader of the Clinical Research Group of the the Heart Research Institute since 1994, and in 2003 was appointed as Clinical Director of the Heart Research Institute. He sits on the National Heart Foundation of Australia’s Cardiovascular Health Advisory Committee and is currently also a Board Member of the                                        Menzies School of Health Research in the Northern Territory.

 

Today’s Best Management Strategies for PLE
Presented by Anitha John,MD, PhD
Children’s National Health System

 Anitha John, MD, PhD, is the Director of the Washington Adult Congenital Heart (WACH) Program at Children’s National Medical Center in Washington, D.C. She completed a dual MD-PhD program in Medicine and Molecular Pathobiology and proceeded to train in internal medicine and pediatrics at Brown University School of Medicine before moving on to do a Pediatric Cardiology Fellowship at The Children’s Hospital of Philadelphia. She became one of a handful of physicians with subspecialty training in Adult Congenital Heart Disease when she completed an Adult Congenital Cardiology Fellowship at the Mayo Clinic. She is also among the first cohort of cardiologists to be Board-Certified in the newly-recognized subspecialty of Adult Congenital Cardiology. Dr. John is committed to research, leading several studies in congenital heart disease and participating in several multicenter studies. These studies have resulted in multiple publications and grant funding. Her research, focused on clinical outcomes in congenital cardiology, is dedicated to discovering the best tools for maintaining lifelong health and improving quality of life for the next generation of CHD patients. She is deeply committed to her patients, organizing a regional collaborative of adult congenital heart programs for the improvement of clinical care of patients in addition to fostering research collaborations

 

Lymphatics as a Potential Therapeutic Target
Presented by Yoav Dori, MD, PhD 
Director of Pediatric Lymphatic Imaging and Interventions and Lymphatic Research
The Children’s Hospital of Philadelphia

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Dr. Dori is a pediatric interventional cardiologist and lymphatic interventionalist with training in cardiac MRI and a Ph.D. in Chemical Engineering.  Together with Dr. Itkin he started the Center for Lymphatic Imaging and Interventions and is the Director of Pediatric Lymphatic Imaging and Interventions and Lymphatic Research.   His main clinical and research interest are in lymphatic flow disorders and the interface between the lymphatic and             cardiovascular system.

 

Emerging Mechanical Support for the Failing Fontan
Presented by Thomas K. Jones, MD
University of Washington School of Medicine
Seattle Children’s Hospital

jones-thomasA Professor of Pediatrics and Adjunct Professor of Medicine at the University of Washington School of Medicine and the Director of the Cardiac Catheterization Laboratories at Seattle Children’s Hospital.  Dr. Jones is a graduate of the Jefferson Medical College in Philadelphia.  After completing his pediatrics residency at the University of Washington and his pediatric cardiology fellowship training at the University of Colorado and the Denver Children’s Hospital, Dr. Jones returned to Seattle where he spent the first 8 years of his career in private practice.  In 1991 Dr. Jones helped create the Children’s Heart Center at the Seattle Children’s Hospital.  In the same year he joined the academic faculty of the University of Washington and became the first Director of the Cardiac Catheterization Laboratories at the Seattle Children’s Hospital.

Dr. Jones’ lifelong work has focused on congenital and structural interventional cardiac catheterization in children and adults.  He has worked to pioneer several less invasive techniques to correct congenital heart conditions.  He has authored over 100 manuscripts, book chapters, and editorials and has participated as an investigator in over 30 multi-center clinical trials in the U.S.  Dr. Jones collaborates with emerging technology companies to develop and test new products designed to treat congenital and structural heart conditions. His research interests are currently focused on percutaneous heart valve implantation.  He continues to serve on national committees and task forces promoting clinical guidelines and practice standards for patients with congenital heart disease. He is collaborates with the FDA on novel approval pathways to improve patient access to more effective cardiovascular devices needed to treat the uncommon conditions that congenital cardiologists face every day.

 

Transplant Considerations–When, Where, and What?
Presented by Stephanie Fuller, MD, MS
The Children’s Hospital of Philadelphia

fuller-stephanieAn attending surgeon in the Division of Cardiothoracic Surgery at The Children’s Hospital of Philadelphia. She is also an Associate Professor at the Perelman School of Medicine at the University of Pennsylvania. She is board certified in general surgery, thoracic surgery and congenital cardiothoracic surgery.  In addition to her pediatric patients, Dr. Fuller also operates on adult patients at Penn Medicine’s Hospital of the University of Pennsylvania and Pennsylvania Hospital (both in Philadelphia). She is the Surgical Director of the Philadelphia Adult Congenital Heart Center, a joint                                         program of The Children’s Hospital of Philadelphia and Penn                                                 Medicine.
Dr. Fuller lectures nationally and internationally and has published numerous peer-reviewed articles and has authored and co-authored numerous chapters for cardiothoracic surgery textbooks. She has leadership appointments at the Society of Thoracic Surgeons, American College of Cardiology and American Heart Association.

Dr. Fuller earned her medical degree from Eastern Virginia Medical School, Norfolk, VA, and then underwent nine years of training before she was appointed a surgeon at The Children’s Hospital of Philadelphia, including a residency in general surgery at Albert Einstein Medical Center, Philadelphia, and residencies in cardiothoracic surgery at George Washington University, Washington, DC, and Thomas Jefferson University Hospital, Philadelphia. She completed her training with a fellowship in congenital cardiothoracic surgery at The Children’s Hospital of Philadelphia.

Her research interests include adult congenital heart disease, neurodevelopmental outcomes and other quality of life outcomes after heart surgery; genetic factors in heart defects; and quality of life into adolescence and young adulthood in patients with pulmonary atresia with intact ventricular septum.

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Pregnancy Management

The Latest Data on Pregnancy and Mechanical Heart Valves.        
Presented by Jolien Roos-Hesselink, MD. PhD

roos-hesselink-jolienJolien Roos-Hesselink is Professor of Cardiology at the Erasmus MC in Rotterdam, The Netherlands.  She is director of the Department of Adult Congenital Heart Disease. Her clinical work and research involves adult congenital heart disease, pregnancy in cardiac patients and aortic disease.
She has authored and co-authored over 200 scientific publications and mentored 10 PhD students. She is incoming-chair of the ESC working group on Adult Congenital Heart Disease. She participated in the Taskforce for writing ESC-guidelines on Pregnancy and cardiac disease, and on Endocarditis.
At the moment she is principal investigator of a multicentre study investigating bicuspid aortic valve disease and Turner syndrome and she is founder and co-chairperson of the Registry on Pregnancy and Cardiac Disease (ROPAC) on behalf of the European Society of Cardiology.

 

Should She Push? Second Stage Labor Decisions.          
Presented by Abigail Khan, MD
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Dr. Abigail May Khan received her medical degree from Harvard Medical School and went on to complete a residency in internal medicine at Massachusetts General Hospital. She completed her adult cardiology fellowship at the University of Pennsylvania and then an adult congenital heart disease fellowship at UPenn/The Children’s Hospital of Philadelphia.  She is currently an Assistant Professor of Medicine at the Knight Cardiovascular Institute at Oregon Health & Science University in Portland, Oregon. Dr. Khan has published in multiple areas of cardiology including biomarkers, risk assessment, and advanced imaging. Her current clinical and research interests include cardiac disease in pregnancy and the use of claims data to understand outcomes in the ACHD population.

 

Cardiac Procedures during Pregnancy – Who, What, When and How?        
Presented by Carole Warnes, MD
Mayo Clinic, Rochester, Minnesota

warnes-caroleDr. Warnes is a Professor of Medicine and a consultant in the Department of Cardiovascular Diseases and Pediatric Cardiology at Mayo Clinic in Rochester, Minnesota.
She received her medical degree from Newcastle upon Tyne University in England and completed general medical training before going to London to pursue cardiology.  She completed her postgraduate thesis at the National Institutes of Health before returning to the National Heart Hospital in London for another two years.  She joined the Department of Cardiovascular Diseases at Mayo Clinic in 1987, where she began the Adult Congenital Heart Disease Clinic.  She was Dean of the School of Continuing Medical Education for ten years.
At Mayo Clinic, she received the Henry S. Plummer Distinguished Physician Award in 2004, the Distinguished Educator Award in 2010, and has received eight Cardiovascular Teacher of the Year Awards.  In 2015 she received the Laennec master Clinician Award from the AHA, and in 2016 she received the 2016 Distinguished Fellow Award from the American College of Cardiology.  She co-chaired the ACC/AHA Guidelines for the Management of Adult Congenital Heart Disease, has edited three books, and published over 200 manuscripts.

 

Managing the Dilated Aorta throughout Pregnancy and Labor.        
Presented by Candice Silversides, MD
Toronto Congenital Cardiac Center for Adults and  Obstetric Medicine Program,
University of Toronto

Silversides_Candice picDr. Silversides is an Associate Professor at the University of Toronto. She is research director of the Toronto Congenital Cardiac Center for Adults and head of the Obstetric Medicine Program at the University of Toronto. She co-chaired the 2009 Canadian Cardiovascular Society Consensus Conference on Adult Congenital Heart Disease. Her research has focused on adult congenital heart disease and pregnancy and heart disease.

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Shunts and the Pulmonary Vasculature

Prevalence of PAH in CHD              
Presented by David Celermajer
University of Sydney
celermajer-david
David Celermajer is the Head of the Discipline of Cardiology at the University of Sydney and Director of ACHD Services at the Royal Prince Alfred Hospital, where over 4000 ACHD patients are followed. An Editorial Board Member at Circulation, JACC, Heart and European Heart Journal, he has published over 400 papers in the international literature with an H-index of 90 and career citations over 40 000. His training was at the University of Sydney (where he won the University Medal), as a Rhodes Scholar in Oxford (studying the effects of alcohol on the heart using MRI!) and his PhD was from the University of London, in Childhood Origins of Atherosclerosis. His current interests include Early Detection of Pulmonary Vascular Disease and optimization of transition and later life care in ACHD.

 

Best Advice for Hemodynamic Assessment and  Interpretation in Patients with an ASD    
Presented by Rick Nishimura
Mayo Clinic

nishimura-rickDr. Nishimura is the Judd and Mary Morris Leighton Professor of Cardiovascular Diseases and Professor of Medicine at the Mayo Clinic College of Medicine.  He is a Master of the American College of Cardiology and Master of the American College of Physicians.  Dr. Nishimura’s research areas have involved the field of cardiovascular hemodynamics.  He has an active clinical practice with a particular interest in hypertrophic cardiomyopathy, valvular heart disease and pericardial disease.   He currently serves as Chair of the ACC/AHA Valvular Heart Disease Guideline Committee and has been on the ACC/AHA Parent Guideline Committee.  He has received the ACC Master Teacher Award, the American Heart Association Laennec Clinician/Educator Award, as well as the Mayo Clinic Distinguished Educator Award and the Mayo Clinic Distinguished Clinician Award.  He served as chair of education for the ACC in the past, was a member of the ACC Board  of Trustees, and was recently awarded the ACC Presidential Citation.

 

Pulmonary Vasoreactive Medications and Decisions about  Shunt Closure       
Presented by Elisa Bradley, MD
The Ohio State University

bradley-elisaDr. Elisa A. Bradley MD is an Assistant Professor of Medicine at The Ohio State University (Columbus, OH). She is a cardiologist and member of the Columbus Ohio Adult Congenital Heart (COACH) Program. She received her medical degree at the University of Illinois, completed Internal Medicine training at the University of Wisconsin, and general Cardiology fellowship at Washington University (St. Louis, MO). She then completed subspecialty adult congenital heart disease fellowship at The Ohio State University and Nationwide Children’s Hospital. Dr. Bradley’s research interests include: pulmonary hypertension in congenital heart disease, right ventricular function and failure, and Fontan associated liver disease.

 

QUERI ES and Lessons Learned Thus Far    
Presented by Curt Daniels
Nationwide Children’s Hospital.
Daniels pic
Curt J. Daniels, MD is a Professor of Clinical Internal Medicine and Pediatrics in the Division of Cardiology at The Ohio State University and the Division of Pediatric Cardiology at Nationwide Children’s Hospital. He is the Dottie Dohan Shepard Chair in Cardiovascular Medicine and the Director of the COACH program: Columbus Ohio Adult Congenital Heart Disease and Pulmonary Hypertension Program. Dr. Daniels is board certified in both pediatric cardiology and internal medicine cardiology. He serves on the Adult Congenital/Pediatric Cardiology Council and is the Co-Chair of the ACHD Working Group of the American College of Cardiology. In addition, Dr. Daniels serves as Chair of the Adult Congenital Heart Association Medical Advisory Board, and is Chair of the ACHA Program Accreditation Committee. Dr. Daniels is committed to education and has developed a fellowship training program for ACHD with over 10 fellow graduates, many of which have started new ACHD programs across the US. He has also worked to develop a subspecialty board certification in ACHD and currently serves as the Chair of the ABIM ACHD Subspecialty Board.  For the past 10 years Dr. Daniels has led a bi-monthly regional patient education lecture series for ACHD patients and has led the effort to provide a personalized electronic medical record for all patients followed in the ACHD program. Dr. Daniels has designed, implemented and successfully completed multiple ACHD research studies and presented his research nationally. In collaboration with colleagues from The Ohio State University and Nationwide Children’s Heart Center he has mentored fellows training thru the NIH T32 Training Grant entitled “Training in Congenital Heart Disease.” In 2011 Dr. Daniels was elected President of the International Society for ACHD with a focus on developing Global Health Initiatives for ACHD.  In 2014, he was selected as Co-Chair of the ACC/AHA ACHD Care Guidelines.

 

Disease Targeting Therapies in Eisenmenger Syndrome: Do They Make a Difference? If So, What Do They Do?
Presented by Alexander (Sasha) Opotowsky
Brigham and Women’s Hospital and Boston Children’s Hospital
opotowsky-sasha
Dr. Opotowsky is a staff member of the Boston Adult Congenital Heart (BACH) and Pulmonary Hypertension service at Brigham and Women’s Hospital and Boston Children’s Hospital, both in Boston. He completed medical school at Columbia University College of Physicians and Surgeons followed by training in Internal Medicine at Brigham and Women’s, adult Cardiology at the University of Pennsylvania, and an additional fellowship in pulmonary vascular disease and adult congenital heart disease with the BACH group. His research focuses on congenital heart                                          disease, exercise physiology, biomarkers and the pulmonary                                                circulation.

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Fontan Considerations I

Who Does Well and Why: Understanding Prognosis in Fontan.
Presented by Aleksander Kempny, MD
Barts Heart Centre, London, UK

kempny-aleksanderDr Aleksander Kempny is a Cardiologist for Adult Congenital Heart Disease at the Barts Heart Centre (formerly the Heart Hospital) in London, UK. He trained at the University Hospital in Muenster, Germany and at the Royal Brompton Hospital in London, UK. He is board certified in internal medicine, cardiology and echocardiography (ESC). His academic interest includes outcome analysis in patients with congenital heart disease as well as myocardial deformation analyses on echocardiography and MRI.  Dr Kempny’s main clinical interest includes management of patients with congenital heart disease, with particular focus on patients with coexisting pulmonary hypertension, patients with cyanotic lesions and Fontan circulation.

 

How Do We Define “Fontan Failure”?
Presented by Luke Burchill, MBBS PhD

burchill-lukeDr. Luke J Burchill MBBS PhD is an Assistant Professor of Medicine and Cardiologist in the Adult Congenital Heart Disease Program at the Knight Cardiovascular Research Institute, Oregon Health Science University (Portland, Oregon, USA). He received his medical degree and doctor of philosophy from the University of Melbourne (Melbourne, VIC, Australia) and subsequently completed postdoctoral fellowships in Adult Congenital Heart Disease (ACHD), Advanced Heart Failure & Heart Transplantation (Toronto General Hospital, ON, Canada), & Echocardiography (Cleveland Clinic, OH, USA). Dr. Burchill has made original contributions in the area of hormonal and genetic heart failure mechanisms, heart failure in ACHD, health care transitions for adolescents with ACHD, quality of life, and transplant outcomes in ACHD patients.

 

Latest Rationale and Data on Pulmonary Vascular Therapy in Fontan.
Presented by Jamil Aboulhosn, MD
Ahmanson/UCLA Adult Congenital Heart Disease Center

aboulhosn-jamilDr. Jamil Aboulhosn is the Director of the Ahmanson/UCLA Adult Congenital Heart Disease Center and an Associate Professor of Medicine and Pediatrics at UCLA.  He is also the Streisand/AHA endowed Chair in Cardiology.  He received his medical degree at the University of California Los Angeles and subsequently completed training in internal medicine, cardiovascular medicine at Harbor-UCLA followed by fellowships in adult congenital heart disease and congenital interventional cardiology at UCLA.  Dr. Aboulhosn has made numerous contributions in the areas of pulmonary hypertension, trans-catheter interventions and cardiovascular imaging.

 

“Double Double Coil and Trouble”: When and Why Should Collaterals Be Closed?
Presented by William Wilson, MBBS (Melb), FRACP
Royal Melbourne Hospital (Australia)

William WilsonWill completed general medicine and cardiology training at the Royal Melbourne Hospital, Australia. He undertook a fellowships in coronary intervention at the Royal Infirmary of Edinburgh (Scotland) and in adult congenital heart disease at the Toronto Congenital Cardiac Centre for Adults. He started as a consultant interventional cardiologist at the Royal Melbourne Hospital in 2014. He is currently undertaking a PhD at the University of Melbourne with a focus on adult congenital heart disease.


What Do We Do With the Liver? A Report from the “Fontan  and Liver Disease” ACC Consortium.

Presented by Curt Daniels, MD
Nationwide Children’s Hospital

daniels-curtCurt J. Daniels, MD is a Professor of Clinical Internal Medicine and Pediatrics in the Division of Cardiology at The Ohio State University and the Division of Pediatric Cardiology at Nationwide Children’s Hospital. He is the Dottie Dohan Shepard Chair in Cardiovascular Medicine and the Director of the COACH program: Columbus Ohio Adult Congenital Heart Disease and Pulmonary Hypertension Program. Dr. Daniels is board certified in both pediatric cardiology and internal medicine cardiology. He serves on the Adult Congenital/Pediatric Cardiology Council and is the Co-Chair of the ACHD Working Group of the American College of Cardiology. In addition, Dr. Daniels serves as Chair of the Adult Congenital Heart Association Medical Advisory Board, and is Chair of the ACHA Program Accreditation Committee. Dr. Daniels is committed to education and has developed a fellowship training program for ACHD with over 10 fellow graduates, many of which have started new ACHD programs across the US. He has also worked to develop a subspecialty board certification in ACHD and currently serves as the Chair of the ABIM ACHD Subspecialty Board.  For the past 10 years Dr. Daniels has led a bi-monthly regional patient education lecture series for ACHD patients and has led the effort to provide a personalized electronic medical record for all patients followed in the ACHD program. Dr. Daniels has designed, implemented and successfully completed multiple ACHD research studies and presented his research nationally. In collaboration with colleagues from The Ohio State University and Nationwide Children’s Heart Center he has mentored fellows training thru the NIH T32 Training Grant entitled “Training in Congenital Heart Disease.” In 2011 Dr. Daniels was elected President of the International Society for ACHD with a focus on developing Global Health Initiatives for ACHD.  In 2014, he was selected as Co-Chair of the ACC/AHA ACHD Care Guidelines.

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The Systemic RV and What It Needs

Systematic RV Strain Imaging: Ready for Prime Time?  
Presented by William R Davidson, Jr. MD

DavidsonWilliam picWilliam R Davidson, Jr. MD is professor of Medicine in Cardiology at the Pennsylvania State University College of Medicine. He graduated from the University of Pennsylvania School of Medicine in 1979.  After finishing cardiology training at The University of Rochester he joined the cardiology faculty at the Penn State Hershey Medical Center in 1985 to serve as director of the echocardiography lab which he did from 1985 to 2014.  He founded the Program for Adult Congenital Heart Disease (PACHD) at Hershey in 1991 and still directs it. Has had a longstanding interest in the application of echocardiography to the diagnosis and management of adult congenital heart disease.  Was a contributor to the 32nd Bethesda Conference and has been active in the ACHA and ISACCD.

 

CRT for the Systemic RV? When and How?     
Presented by Stephen Seslar, MD

seslar-stephenDr. Steve Seslar is co-director of the UW Adult Congenital Electrophysiology Program and a UW associate professor of pediatrics. In addition to general cardiology, he is an expert in heart rhythm disorders and electrophysiology procedures.
He helped create a national quality improvement registry of pediatric and congenital electrophysiology that will capture outcomes on ablation procedures in adult patients with congenital heart disease. He is currently working to create a simulator to make electrophysiology procedures safer and more effective in adults with complex congenital heart disease and associated heart rhythm disorders. He is also collaborating on a stem-cell research project to help prevent arrhythmias in hearts damaged by surgery or a heart attack.
Dr. Seslar earned his bachelor’s degree from the University of Michigan and his M.D. /Ph.D. from Georgetown University. He did his pediatric residence training at the University of California, San Diego (UCSD) followed by pediatric cardiology and electrophysiology fellowship at Boston Children’s Hospital. Following this Dr. Seslar was the director of the electrophysiology program at UCSD. After 4 years at this position, he moved to the UW in 2008 to direct the Adult Congenital Electrophysiology Program.

 


Arbs and the Systemic RV: What We Do with Our Patients  and Why. 

Presented by Barbara Mulder, MD
Academic Medical Center in Amsterdam, the Netherlands.

mulder-barbaraBarbara JM Mulder is Professor of Cardiology in the Academic Medical Center in Amsterdam, the Netherlands. In 2001 she initiated the national registry and DNA bank for congenital heart disease, named CONCOR ( CONgenital CORvitia), in which presently over 16.000 patients have been included. She chaired the European Heart Survey on congenital heart disease with 79 participating centers from 24 countries.. From 2010 until 2012 she was president of the International Society of Adult Congenital Cardiology, ISACHD. At present, she is the president of the                                                  Netherlands Society of Cardiology.

 

Mechanical Support for the Systemic RV.     
Presented by Joshua Hermsen, MD
The University of Washington

hermsen-joshAn Assistant Professor of Surgery in the division of Cardio-thoracic Surgery at The University of Washington. Dr.Joshua Hermsen is board certified in adult and congenital heart surgery and specialize in the operative care of adults with congenital heart disease.  Other areas of specific interest include heart transplantation, hypertrophic ardiomyopathy, and infectious endocarditis.

 

Emerging Features of the Hypoplastic Left Heart Cohort.    
Presented by William Wilson, MBBS (Melb), FRACP
Royal Melbourne Hospital (Australia)

William WilsonWill completed general medicine and cardiology training at the Royal Melbourne Hospital, Australia. He undertook a fellowships in coronary intervention at the Royal Infirmary of Edinburgh (Scotland) and in adult congenital heart disease at the Toronto Congenital Cardiac Centre for Adults. He started as a consultant interventional cardiologist at the Royal Melbourne Hospital in 2014. He is currently undertaking a PhD at the University of Melbourne with a focus on adult congenital heart disease.

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