The 21st Century Patient: The Convergence of Information Technology and Empowerment
Presented by Ariane Marelli, MD, FRCP, MPH, FACC, FAHA
Professor of Medicine, McGill University
Director, McGill Adult Unit for Congenital Heart Disease
Director of Research and Academic Affairs, Cardiology, McGill University Health Center
Dr. Ariane Marelli is a Professor of Medicine at McGill University. She is the Director of Cardiovascular Research at the McGill University Health Centre. She is the Associate Director of Academic Affairs for Cardiology at the McGill University Health Centre. She completed her core training in adult cardiology and a fellowship in pediatric cardiology at McGill University. She obtained advanced fellowship training in Adult Congenital Heart Disease at the University of California in Los Angeles where she was the first person to graduate from the first adult congenital heart disease program in the US. She completed an MPH at the Harvard School of Public Health with a focus on methodology for large databases and health information technology. Dr. Marelli has written a book, papers and book chapters on congenital heart disease in children and adults. She lectures internationally on topics related to adults with congenital heart disease. She has received awards of excellence in research from McGill University, the Fonds de Recherche en Santé Québec and the Heart and Stroke Foundation of Canada as well as from the American Heart Association and the American College of Cardiology. Her research interests involve the impact of the changing epidemiology of congenital heart disease on health services delivery, quality and policy.
The ACHA Vision for the ACHD Community
Presented by Glenn R. Tringali
National Executive Director, Adult Congenital Heart Association
Glenn R. Tringali, National Executive Director, in partnership with the Board of Directors and Medical Advisory Board, is responsible for leading ACHA’s mission to improve and extend the lives of the millions born with heart defects through education, advocacy, and the promotion of research. Glenn has more than three decades of nonprofit administrative experience with small, mid-sized, and large national and international healthcare organizations. Prior to joining ACHA in 2104, Glenn previously served as Chief Executive Officer of the Cerebral Palsy International Research Foundation and the National Alliance for Autism Research and also held senior administrative and fund development positions with the Cancer Research Institute, Autism Speaks, Juvenile Diabetes Research Foundation, and March of Dimes.
Patient Perspectives on Championing the CHD Cause
Presented by Kelly Aicher
Vice President, The Children’s Heart Foundation
Kelly Aicher is a senior manager with The Bike Gallery and has been at the helm of the Lake Oswego Location since its opening in 1997. Kelly is a graduate of Whitman College, a former Firefighter and EMT and a has spent 25 years in the bicycle business including a position with Trek Bicycle that allowed him to visit 46 states during his career. He is an adult survivor of a Congenital Heart Defect, Tetralogy Of Fallot, for which he had corrective surgery in Portland in 1972. Kelly is a very active member and has served on the board of the Downtown Lake Oswego Rotary Club where he has been honored as a Paul Harris Fellow. In his free time, Kelly is an avid Oenophile, Audiophile and enjoys cycling, skiing, music and traveling with his wife Nicky and their 2 Beagles. He fulfilled a goal of running the Big Sur Marathon in 2007. Kelly’s passion for wine, cycling and the Children’s Heart foundation has led to the Wine Ride series that partners with some of the best wineries in Oregon in order to raise funds for CHF.
How Congenital Heart Disease Affects a Family
Presented by Julie LeGassick
President, The Children’s Heart Foundation
Julie LeGassick holds a bachelors of arts in Geology and, prior to 2009, Julie worked as a geologist for an environmental consulting firm. She specialized in historical research to pinpoint the presence of soil and groundwater contamination on commercial properties. She is currently staying home to take care of her three daughters. After the successful correction of her oldest daughter’s transposed great arteries, Julie hopes to help other families enjoy the happiness that is a healthy child. When not chasing her children, Julie enjoys playing volleyball, yoga, running, and biking.
Fit Bit Frenzy: Tips for Providers on Patient Self-Quantification
Presented by Tina Kaufman, PhD, PA-C
Knight Cardiovascular Institute, Oregon Health and Science University