Heart Failure in Adult Congenital Heart Disease

Patient Perspective

Andrea Waguespack


PLENARY SESSION: Heart Failure Types in ACHD: Differences and Similarities as Compared with Heart Failure in Acquired Heart Disease

Karen Stout, MD, FACC



Novel Medical Therapies in Heart Failure in ACHD

Barbara Mulder, MD, PhD, FESC


Neurohumoral Modification in ACHD vs Heart Failure in Acquired Heart Disease

Alexander Opotowsky, MD, MPH, MMSc

PLENARY SESSION: The FaiIing Right Ventricle – Clinical Cases


Matthias Greutmann, MD, FESC (Switzerland)


Congenitally Corrected Transposition of the Great Arteries with Transcatheter Valve Regurgitation

William Miranda, MD (Team Mayo)


Mustard/Senning Right Ventricle Failure

Preadeepkumar Charla, MD (Team Toronto)


PLENARY SESSION: Fontan Management

The Role of Lymphatics in the Failing Fontan Circulation

Vibeke Hjortdal, MD, PhD, DMSc

Systemic Disease in the Failing Fontan Circulation

Gruschen Veldtman, MBChB, FRCP


Novel Medical Therapies for the Failing Fontan

Joost van Melle, MD, PhD


Diastolic Disease in the Fontan: Diagnosis and Management

Werner Budts, MD, PhD


KEYNOTE LECTURE: Fontan and Advanced Medical Support

Mark Rodefeld, MD


PLENARY SESSION: Fontan Management


How to Set Up a Fontan Clinic

Jack Rychik, MD


End of Life Issues for the Failing Fontan

Adrienne Kovacs, PhD


Role of Exercise and Exercise Rehabilitation in the Fontan Circulation

Joost van Melle, MD, PhD


Gary Webb Annual ACHD Lecture


Introduction to Gary Webb Lecture / A Tribute to Gary Webb 

Erwin Oechslin, MD, FRCPC, FESC / Barbara Mulder, MD, PhD, FESC


PLENARY SESSION: Controversies in Neurodevelopment in ACHD


Adult Neurocognitive Assessment and Developmental Outcomes

Michael Earing, MD


Executive Dysfunction and its Impact on the Lives of Adult Patients

Michelle Gurvitz, MD


Effectively Managing Adolescent and Young Adult Patients with Significant Neurodevelopmental Deficits

Gretchen Carroll, MA


BREAKOUT SESSION: Cardiac Catheterization, Electrophysiology and Hybrid Procedures


Transcatheter Pulmonary Valve Replacement in the Native Right Ventricular Outflow Tract

Bryan Goldstein, MD, FACC, FSCAI, FAAP


Transcatheter Tricuspid Valve Treatment

Jamil Aboulhosn, MD, FACC, FSAI


TAVR and MitraClip Roles in Congenital Heart Disease

Eric Horlick, MD


Combining Electrophysiology and Transcatheter Structural Interventions

Jeremy Moore, MD


Infective Endocarditis on Transcatheter Valves

Aimee Armstrong, MD, FAAP, FACC, FSCAI



NOACs for Thromboembolic Prevention in Patients with a Fontan Circulation

Hayang Yang, MD


Device Therapy in the Adult with Congenital Heart Disease

Richard Czosek, MD



PLENARY SESSION: Recent Advances in Adult Congenital Heart Disease


Infective Endocarditis Risk After Percutaneous Pulmonary and Tricuspid Valve Implantation with the Melody and Sapien Valves

Jana Tarabay, MD


Resuscitation for Out-of-Hospital Cardiac Arrest in Adults with Congenital Heart Disease

Jim Vehmeijer, MD


BREAKOUT SESSION: ACHD Program Administration

Why Build an ACHD Program?

Danielle Hile


ACHD Business Model :Key Elements

Curt Daniels, MD


Practical Tips for ACHA-ACHD Program Accreditation

Theresa Faulkner, DNP, RN


How to Build Regional ACHD Program Collaborations

Anitha John, MD, PhD


Essential Components for an Academically Successful ACHD Program

Jamil Aboulhosn, MD, FACC, FSAI


Transition Programs: Unique Models for Success

Keila Lopez, MD, MPH and PANEL DISCUSSION and Q&A


BREAKOUT SESSION: Emerging Imaging Technologies


Image Integration in ACHD

Joseph Vettukattil, BSC, MBBS, MD, DNB, FRCP, FRSM, FRCPCH


Surgical Planning for Complex Congenital Heart Disease

Ajit Yoganathan, MD


The Next Frontier in Congenital Heart Surgical Planning: Virtual and Augmented Reality-Based Simulations

Ryan Moore, MD and David Morales, MD



BREAKOUT SESSION: Controversies in Pulmonary Arterial Hypertension


2017 View of Pulmonary Hypertension and Congenital Heart Disease

Alexander Opotowsky, MD, MPH, MMSc


Properly Performing a PH Hemodynamic Heart Catheterization in Congenital Heart Disease

Werner Budts, MD, PhD


DEBATE: The Criteria to Close Atrial Septal Defects is the same for both Younger and Older Adults

Pro-Jamil Aboulhosn, MD, FACC, FSAI

Con- Curt Daniels, MD



DEBATE: PAH Therapy is Indicated for All Fontan Patients

Pro- Barbara Mulder, MD, PhD, FESC

Con- Craig Broberg, MD, MRC


BREAKOUT SESSION: Fellows Summit and ACHD Program Administration


Keynote 1: Negotiation, Time Management and Strategy

Jennifer Dauer, MD


Keynote 2: Academia

Alexander Opotowsky, MD, MPH, MMSc


Keynote 3: Private Practice

Scott Pilgrim, MD


Keynote: Getting Your Pregnancy Program from Good to Great

Carole Warnes, MD, FRCP, FACC






Patient Perspective

BreeAnna Bergman


The Anesthetist’s View: Minimizing Cardiac Risk in the Delivery Room

Andrea Girnius, MD


The Placenta in Cardiac Disease

Helen Jones, PhD



CLOSING LECTURE: Artificial Intelligence in Adult Congenital Heart Disease

Nathaniel Bischoff, BS


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2017 UCLA Symposium presentations

Adult Congenital Heart Disease: Quality Care in the Era of Certification and Accreditation – A Practical Approach



Jamil Aboulhosn, MD

Director, Ahmanson/UCLA Adult Congenital Heart Disease Center, Streisand Chair in Cardiology Division of Cardiology, Departments of Medicine and Pediatrics



Major Forms of Congenital Heart Disease: Importance and Challenge of Early Detection

Mark S. Sklansky, MD
Chief, Division of Pediatric Cardiology James H. Nicholson Professor of Clinical Pediatrics
Department of Pediatrics
David Geffen School of Medicine at UCLA
Medical Director, UCLA Children’s Heart Center
Mattel Children’s Hospital UCLA


Transition, Transfer and Life-Long Care
Leigh Christopher Reardon, MD
Assistant Clinical Professor of Medicine and Pediatrics
Director, Pediatric Mechanical Circulatory Support and Transitional Cardiac Care Program
Ahmanson/UCLA Adult Congenital Heart Disease Center
UCLA Children’s Heart Center



The Failing Fontan- The Ultimate Challenge
Jeannette Lin, MD, Assistant Clinical Professor Division of Cardiology Department of Medicine



The Fontan Liver- A Hepatologist’s Perspective

Rob Venick, MD
Associate Professor of Pediatrics and Surgery
Division of Pediatric Gastroenterology, Hepatology and Nutrition

Surgical Considerations in Single Ventricle Patients
Brian Reemtsen, MD, Professor of Cardiothoracic Surgery Director, UCLA Congenital Cardiac Surgery

Anesthesia and ICU Considerations in Single Ventricle Patients

Joseph Meltzer, MD, Associate Clinical Professor, Critical Care
Chief, Critical Care Division at UCLA Medical Director, CTICU

Arrhythmia Considerations in Single Ventricle Patients

Kevin M. Shannon, MD,  Professor of Pediatric Cardiology Department of Pediatrics



ACHD Program Accreditation – What Does It Mean and What Do You Need?

Pamela Miner, RN, MN, NP
Nurse Practitioner
Ahmanson/UCLA Adult Congenital Heart Disease Center
Division of Cardiology Department of Medicine

Lifestyle Considerations in ACHD – Exercise Quantification & Defining “Normal”
Linda Houser, NP

Health Care Reform and The Importance of Care Coordination for Successful Management of Adults with CHD
Jennifer Doliner, RN, BSN




High Risk Obstetrical Management in ACHD – A Multidisciplinary Approach
Mary M. Canobbio, RN, CNS, FAAN, FAHA


11:00 Focusing on Quality of Life: Psychosocial Obstacles and Setting Realistic Goals for Life Long Care
David Highfill, LCSW, MSW

11:15 Question and Answer Session 11:30 Lunch
Moderator: John S. Child, MD, FACC, FAHA, FASE
12:30 Keynote Speaker
Adult Congenital Cardiac Surgery – The Past, the Present and the Future
Hillel Laks, MD
1:00 Transcatheter Valve Repair and Replacement in ACHD
Daniel S. Levi, MD
1:15 Hybrid Interventions in ACHD
Jamil Aboulhosn, MD
1:30 Imaging to Guide Interventions in ACHD
Jeannette Lin, MD
1:45 Organ Transplantation in ACHD
Reshma Biniwale, MD
2:00 Mechanical Support Options in ACHD

The Role of the Interventional Radiologist – From Liver Biopsies to Stent Grafts
John Moriarty, MD
2:30 Question and Answer Session

3:00 Pulmonary Hypertension in ACHD
– Medical Treatment Options and Timing of Transplantation
Rajan Saggar, MD
3:15 MRI/CTA, The Advantages and Challenges of Cross-Sectional Imaging in ACHD
Pierangelo Renella, MD
3:30 4D MRI, New Contrast Agents, Stress MRI, MRI Interventions… How Much More Can We Hope for From MRI?
J. Paul Finn, MD
3:45 From Bench to Bedside – The Importance of Basic and Translational Research in an ACHD Program
Gentian Lluri, MD, PhD
4:00 Device Therapy: From Pacemakers to Leadless ICDs – The Future of Device Therapy in ACHD
Jeremy P. Moore, MD, MS

4:15 Question and Answer Session

7:00 Continental Breakfast Moderator: Jamil Aboulhosn, MD
8:00 From Genomics to 3-D Printing in CHD: The Future is Here
Jamil Aboulhosn, MD
8:15 Illustrative Case Presentations
Presenters: Joanna Ghobrial, MD, MSc, Anne Kemble, MD, Ian Lindsay, MD, and Sanjay Sinha, MD
Panel: John S. Child, MD, FACC, FAHA, FASE, Hillel Laks, MD, Jeannette Lin, MD, Greg Perens, MD, Leigh Christopher Reardon, MD, and Kevin M. Shannon, MD
9:45 Hands-On Session (Groups with 20 minute rotation)
MRI/CTA Case Reviews
J. Paul Finn, MD and Pierangelo Renella, MD
Echocardiography Case Reviews
John S. Child, MD, FACC, FAHA,
FASE, Jeannette Lin, MD, and Gentian Lluri, MD
Gross Pathology Station
Michael C. Fishbein, MD and Gregory A. Fishbein, MD
VAD/Surgical and Interventional Work Station
Reshma Biniwale, MD, Daniel S. Levi, MD, Leigh Christopher Reardon, MD, Brian Reemtsen, MD, and
Morris M. Salem, MD, FACC, FSCAI
Pacemaker/ICD Simulations in ACHD
Jeremy Moore, MD and Kevin M. Shannon, MD
11:50 Closing Comments
Jamil Aboulhosn, MD
12:00 Brown Bag Lunch
1:00 “Developing a Better Understanding of Congenital Cardiac Anatomy
and Physiology through Art” – Collaboration between The Getty Museum and Ahmanson/UCLA Adult Congenital Heart Disease Center




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D) 2016 Washington ACHD Meeting

Welcoming Remarks 

Director, Washington Adult Congenital Heart Program Children’s National Health System MedStar Washington Hospital Center MedStar Heart & Vascular Institute Assistant Professor of Pediatrics George Washington University Washington, DC





Advancing the Field Through Lifelong Partnership With the ACHD Patient.

Director of Government Affairs The Federal Group, Inc.
Indianapolis, IN





Pulmonary Valve Replacement and Re-Replacement:  When is the best time and Why?

Director, Wisconsin Adult Congenital Heart Disease Program (WAtCH)
Professor of Internal Medicine and Pediatrics
Divisions of Adult Cardiovascular Medicine and Pediatric Cardiology Medical College of Wisconsin
Milwaukee, WI



CRT and ICD Placement: What Does the Data Tell Us?

Director, Adult Congenital Arrhythmia Program Clinical Director, Heart Rhythm Services
Co-Director, Cardiac Electrophysiology Fellowship Program Division of Cardiovascular Diseases
Department of Internal Medicine Mayo Clinic
Rochester, MN



Panel Discussion



 Management of the Pregnant ACHD Patient


Risk Stratification and Assessment:  a Cardiologist’s Perspective

Pediatric Cardiologist
Washington Adult Congenital Heart Program Children’s National Health System Washington, DC




Risk Stratification and Assessment: MFM Perspective

Chair, Department of Obstetrics/Gynecology Director, Genetics and Fetal Medicine MedStar Washington Hospital Center Professor in Obstetrics and Gynecology Georgetown University School of Medicine Washington, DC



Contraception Choices and Considerations

Director,Women’s and Complex Heart Diseases University of Maryland Comprehensive Heart Center Assistant Professor of Medicine and Pediatrics University of Maryland School of Medicine Baltimore, MD


Transposition of the Great Arteries: How to Manage the Patient with a Systemic Right Ventricle

Medical Management of the Failing Right Ventricle

Attending Physician
Cincinnati Adult Congenital Heart Program Assistant Professor, Pediatrics
University of Cincinnati College of Medicine Cincinnati, OH




Imaging Modalities and Functional Assessment of the Systemic Right Ventricle

Director, Cardiovascular 3D Printing Program Sheikh Zayed Institute for Surgical Innovation Attending Physician
Cardiac MRI, Echocardiography Children’s National Health System Washington, DC



Pacemaker and ICD Considerations: How, Where, and Why?

Chief, Division of Cardiology
Co-Director, Children’s National Heart Institute Children’s National Health System
Professor of Pediatrics
George Washington University Washington, DC



Surgical and Ventricular Assist Device I

Transplant Options

Attending Pediatric Cardiac Surgeon Children’s National Health System
Assistant Professor, Surgery and Pediatrics
George Washington University School of Medicine and Health Sciences Washington, DC




Question & Discussion
Moderator: Anitha S.John, MD, PhD
Panelists: C. Berul, C. Learn, L. Olivieri, A. Zaidi


Future Directions in ACHD Care: Advancing the Field for Research Opportunities

Commissioner of Food and Drugs
United States Food and Drug Administration Silver Spring, MD



Questions & Answers
Robert Califf, MD



Psychosocial Issues in ACHD Care

Neurocognitive Issues in ACHD Care

Director, Texas Adult Congenital Heart Program Division of Pediatrics & Pediatric Oncology Texas Children’s Hospital
Baylor St. Luke’s Medical Center
Associate Professor, Pediatrics & Internal Medicine Division of Cardiology
Baylor College of Medicine Houston, TX





My Healthy Heart: Empowering Young Adults with CHD to Manage Their Own Health Care

Nurse Practitioner, Cardiology Children’s National Health System Washington, DC







Case Based Learning: High Risk Pregnancy Management


Peripartum Cardiomyopathy

Professor of Medicine
Professor of Obstetrics and Gynecology Keck School of Medicine of USC University of Southern California
Los Angeles, CA



Pregnancy and Pulmonary Hypertension

Chief , Department of Cardiology MedStar Good Samaritan Hospital MedStar Union Memorial Hospital MedStar Heart & Vascular Institute Baltimore, MD



Anti-coagulation during Pregnancy

Medical Director, Philadelphia Ad ult Congenital Heart Disease Center Penn Medicine
Children’s Hospital of Philadelphia Philadelphia, PA

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Guns Blazing: Wild West Debates of ACHD Controversies

Primary Prevention ICD in a Systemic RV with EF<30%?    YES: The Electric Safety Net!             
Karen Stout, MD
University of Washington, in Seattle, Washington

stout_karenDr. Karen Stout is a Professor of Medicine and Pediatrics (Cardiology) at the University of Washington, in Seattle, Washington.  She founded and directs the Adult Congenital Heart Disease program, which is a collaborative program between the University of Washington Medical Center and Seattle Children’s Hospital.  She participates in ACHD educational activities and is involved in ACHD focused organizational activities, including serving as the chair of the 2016 ACC/AHA Care of the Adult with Congenital Heart Disease Guidelines and as chair of the AHA Scientific Statement on Heart Failure in CHD.  She is on the Adult Congenital and Pediatric Cardiology Council of the ACC, is past chair of the AHA committee on Adults with Congenital Heart Disease, on the ACHD Exam writing committee and the Cardiology Board of the ABIM, as well as significant involvement with the Adult Congenital Heart Association.  In her spare time she enjoys snowboarding, hiking, biking, travelling and hanging out with her family and friends (and dog!).

Primary Prevention ICD in a Systemic RV with EF<30%?    NO: Keep Calm and Carry On.           

Alexander (Sasha) Opotowsky, MD
opotowsky-sashaDr. Opotowsky is a staff member of the Boston Adult Congenital Heart (BACH) and Pulmonary Hypertension service at Brigham and Women’s Hospital and Boston Children’s Hospital, both in Boston. He completed medical school at Columbia University College of Physicians and Surgeons followed by training in Internal Medicine at Brigham and Women’s, adult Cardiology at the University of Pennsylvania, and an additional fellowship in pulmonary vascular disease and adult congenital heart disease with the BACH group. His research focuses on congenital heart disease, exercise physiology, biomarkers and the pulmonary circulation.

A Congenital Heart Surgeon is Imperative to ACHD Care       
Ed Hickey, MD
Toronto General Hospital

Ed Hickey is a congenital heart surgeon at Sick Kids, Toronto, and is the program lead for ACHD surgery at Toronto General Hospital.  His roots are British, and he graduated from the University of Southampton in 1999.  Much of his cardiac surgical training was in the UK (Southampton and Guy’s, London), before completing a fellowship at Sick Kids 2010-2012.  He was the Kirklin-Ashburn fellow for the Congenital Heart surgeons’ society 2006-2008, during which he learnt the art and science of parametric time-related analysis under the tutelage of Dr Eugene Blackstone.  His academic interests include:  1) understanding congenital heart disease through time-related analyses, 2) the Human Factor and impact of error in high-stakes medicine and 3) improving neurologic outcomes for neonates with congenital heart disease.


A Congenital Heart Surgeon is Not as Essential as We Think         
Michael Landzberg, MD
Children’s Hospital and Brigham and Women’s Hospital

landzberg-mikeDr. Michael Landzberg is founding Director of the Boston Adult Congenital Heart (BACH) and Pulmonary Hypertension Service of the Children’s Hospital and Brigham and Women’s Hospital, Boston, and Associate Professor of Medicine, Harvard Medical School. Dr. Landzberg is a native New Yorker, a graduate of the Bronx High School of Science and Columbia College, where he met his future wife, Abby. Harvard Medical School was followed by Internal Medicine training and Chief Residency at Columbia Presbyterian Medical Center, and ultimately dual Adult and Pediatric Cardiology Fellowship Training at Brigham and Women’s Hospital and Boston Children’s Hospital,
under the guidance of James Lock. He currently remains an awarded teacher, mentor, and clinician scientist at both institutions.

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Meeting Wrap Up

Thriving and Surviving as an ACHD Practitioner
Adrienne H Kovacs, PhD, CPsych
Adrienne Kovacs library headshot 2011


Keynote Address: Lessons from the Past, Directions for the  Future

Carole Warnes, MD
Mayo Clinic  Rochester
warnes-caroleDr. Warnes is a Professor of Medicine and a consultant in the Department of Cardiovascular Diseases and Pediatric Cardiology at Mayo Clinic in Rochester, Minnesota.
She received her medical degree from Newcastle upon Tyne University in England and completed general medical training before going to London to pursue cardiology.  She completed her postgraduate thesis at the National Institutes of Health before returning to the National Heart Hospital in London for another two years.  She joined the Department of Cardiovascular Diseases at Mayo Clinic in 1987, where she began the Adult Congenital Heart Disease Clinic.  She was Dean of the School of Continuing Medical Education for ten years.

At Mayo Clinic, she received the Henry S. Plummer Distinguished Physician Award in 2004, the Distinguished Educator Award in 2010, and has received eight Cardiovascular Teacher of the Year Awards.  In 2015 she received the Laennec master Clinician Award from the AHA, and in 2016 she received the 2016 Distinguished Fellow Award from the American College of Cardiology.  She co-chaired the ACC/AHA Guidelines for the Management of Adult Congenital Heart Disease, has edited three books, and published over 200 manuscripts.

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