2017 UCLA Symposium presentations

Adult Congenital Heart Disease: Quality Care in the Era of Certification and Accreditation – A Practical Approach



Jamil Aboulhosn, MD

Director, Ahmanson/UCLA Adult Congenital Heart Disease Center, Streisand Chair in Cardiology Division of Cardiology, Departments of Medicine and Pediatrics



Major Forms of Congenital Heart Disease: Importance and Challenge of Early Detection

Mark S. Sklansky, MD
Chief, Division of Pediatric Cardiology James H. Nicholson Professor of Clinical Pediatrics
Department of Pediatrics
David Geffen School of Medicine at UCLA
Medical Director, UCLA Children’s Heart Center
Mattel Children’s Hospital UCLA


Transition, Transfer and Life-Long Care
Leigh Christopher Reardon, MD
Assistant Clinical Professor of Medicine and Pediatrics
Director, Pediatric Mechanical Circulatory Support and Transitional Cardiac Care Program
Ahmanson/UCLA Adult Congenital Heart Disease Center
UCLA Children’s Heart Center



The Failing Fontan- The Ultimate Challenge
Jeannette Lin, MD, Assistant Clinical Professor Division of Cardiology Department of Medicine



The Fontan Liver- A Hepatologist’s Perspective

Rob Venick, MD
Associate Professor of Pediatrics and Surgery
Division of Pediatric Gastroenterology, Hepatology and Nutrition

Surgical Considerations in Single Ventricle Patients
Brian Reemtsen, MD, Professor of Cardiothoracic Surgery Director, UCLA Congenital Cardiac Surgery

Anesthesia and ICU Considerations in Single Ventricle Patients

Joseph Meltzer, MD, Associate Clinical Professor, Critical Care
Chief, Critical Care Division at UCLA Medical Director, CTICU

Arrhythmia Considerations in Single Ventricle Patients

Kevin M. Shannon, MD,  Professor of Pediatric Cardiology Department of Pediatrics



ACHD Program Accreditation – What Does It Mean and What Do You Need?

Pamela Miner, RN, MN, NP
Nurse Practitioner
Ahmanson/UCLA Adult Congenital Heart Disease Center
Division of Cardiology Department of Medicine

Lifestyle Considerations in ACHD – Exercise Quantification & Defining “Normal”
Linda Houser, NP

Health Care Reform and The Importance of Care Coordination for Successful Management of Adults with CHD
Jennifer Doliner, RN, BSN




High Risk Obstetrical Management in ACHD – A Multidisciplinary Approach
Mary M. Canobbio, RN, CNS, FAAN, FAHA


11:00 Focusing on Quality of Life: Psychosocial Obstacles and Setting Realistic Goals for Life Long Care
David Highfill, LCSW, MSW

11:15 Question and Answer Session 11:30 Lunch
Moderator: John S. Child, MD, FACC, FAHA, FASE
12:30 Keynote Speaker
Adult Congenital Cardiac Surgery – The Past, the Present and the Future
Hillel Laks, MD
1:00 Transcatheter Valve Repair and Replacement in ACHD
Daniel S. Levi, MD
1:15 Hybrid Interventions in ACHD
Jamil Aboulhosn, MD
1:30 Imaging to Guide Interventions in ACHD
Jeannette Lin, MD
1:45 Organ Transplantation in ACHD
Reshma Biniwale, MD
2:00 Mechanical Support Options in ACHD

The Role of the Interventional Radiologist – From Liver Biopsies to Stent Grafts
John Moriarty, MD
2:30 Question and Answer Session

3:00 Pulmonary Hypertension in ACHD
– Medical Treatment Options and Timing of Transplantation
Rajan Saggar, MD
3:15 MRI/CTA, The Advantages and Challenges of Cross-Sectional Imaging in ACHD
Pierangelo Renella, MD
3:30 4D MRI, New Contrast Agents, Stress MRI, MRI Interventions… How Much More Can We Hope for From MRI?
J. Paul Finn, MD
3:45 From Bench to Bedside – The Importance of Basic and Translational Research in an ACHD Program
Gentian Lluri, MD, PhD
4:00 Device Therapy: From Pacemakers to Leadless ICDs – The Future of Device Therapy in ACHD
Jeremy P. Moore, MD, MS

4:15 Question and Answer Session

7:00 Continental Breakfast Moderator: Jamil Aboulhosn, MD
8:00 From Genomics to 3-D Printing in CHD: The Future is Here
Jamil Aboulhosn, MD
8:15 Illustrative Case Presentations
Presenters: Joanna Ghobrial, MD, MSc, Anne Kemble, MD, Ian Lindsay, MD, and Sanjay Sinha, MD
Panel: John S. Child, MD, FACC, FAHA, FASE, Hillel Laks, MD, Jeannette Lin, MD, Greg Perens, MD, Leigh Christopher Reardon, MD, and Kevin M. Shannon, MD
9:45 Hands-On Session (Groups with 20 minute rotation)
MRI/CTA Case Reviews
J. Paul Finn, MD and Pierangelo Renella, MD
Echocardiography Case Reviews
John S. Child, MD, FACC, FAHA,
FASE, Jeannette Lin, MD, and Gentian Lluri, MD
Gross Pathology Station
Michael C. Fishbein, MD and Gregory A. Fishbein, MD
VAD/Surgical and Interventional Work Station
Reshma Biniwale, MD, Daniel S. Levi, MD, Leigh Christopher Reardon, MD, Brian Reemtsen, MD, and
Morris M. Salem, MD, FACC, FSCAI
Pacemaker/ICD Simulations in ACHD
Jeremy Moore, MD and Kevin M. Shannon, MD
11:50 Closing Comments
Jamil Aboulhosn, MD
12:00 Brown Bag Lunch
1:00 “Developing a Better Understanding of Congenital Cardiac Anatomy
and Physiology through Art” – Collaboration between The Getty Museum and Ahmanson/UCLA Adult Congenital Heart Disease Center




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D) 2016 Washington ACHD Meeting

Welcoming Remarks 

Director, Washington Adult Congenital Heart Program Children’s National Health System MedStar Washington Hospital Center MedStar Heart & Vascular Institute Assistant Professor of Pediatrics George Washington University Washington, DC





Advancing the Field Through Lifelong Partnership With the ACHD Patient.

Director of Government Affairs The Federal Group, Inc.
Indianapolis, IN





Pulmonary Valve Replacement and Re-Replacement:  When is the best time and Why?

Director, Wisconsin Adult Congenital Heart Disease Program (WAtCH)
Professor of Internal Medicine and Pediatrics
Divisions of Adult Cardiovascular Medicine and Pediatric Cardiology Medical College of Wisconsin
Milwaukee, WI



CRT and ICD Placement: What Does the Data Tell Us?

Director, Adult Congenital Arrhythmia Program Clinical Director, Heart Rhythm Services
Co-Director, Cardiac Electrophysiology Fellowship Program Division of Cardiovascular Diseases
Department of Internal Medicine Mayo Clinic
Rochester, MN



Panel Discussion



 Management of the Pregnant ACHD Patient


Risk Stratification and Assessment:  a Cardiologist’s Perspective

Pediatric Cardiologist
Washington Adult Congenital Heart Program Children’s National Health System Washington, DC




Risk Stratification and Assessment: MFM Perspective

Chair, Department of Obstetrics/Gynecology Director, Genetics and Fetal Medicine MedStar Washington Hospital Center Professor in Obstetrics and Gynecology Georgetown University School of Medicine Washington, DC



Contraception Choices and Considerations

Director,Women’s and Complex Heart Diseases University of Maryland Comprehensive Heart Center Assistant Professor of Medicine and Pediatrics University of Maryland School of Medicine Baltimore, MD


Transposition of the Great Arteries: How to Manage the Patient with a Systemic Right Ventricle

Medical Management of the Failing Right Ventricle

Attending Physician
Cincinnati Adult Congenital Heart Program Assistant Professor, Pediatrics
University of Cincinnati College of Medicine Cincinnati, OH




Imaging Modalities and Functional Assessment of the Systemic Right Ventricle

Director, Cardiovascular 3D Printing Program Sheikh Zayed Institute for Surgical Innovation Attending Physician
Cardiac MRI, Echocardiography Children’s National Health System Washington, DC



Pacemaker and ICD Considerations: How, Where, and Why?

Chief, Division of Cardiology
Co-Director, Children’s National Heart Institute Children’s National Health System
Professor of Pediatrics
George Washington University Washington, DC



Surgical and Ventricular Assist Device I

Transplant Options

Attending Pediatric Cardiac Surgeon Children’s National Health System
Assistant Professor, Surgery and Pediatrics
George Washington University School of Medicine and Health Sciences Washington, DC




Question & Discussion
Moderator: Anitha S.John, MD, PhD
Panelists: C. Berul, C. Learn, L. Olivieri, A. Zaidi


Future Directions in ACHD Care: Advancing the Field for Research Opportunities

Commissioner of Food and Drugs
United States Food and Drug Administration Silver Spring, MD



Questions & Answers
Robert Califf, MD



Psychosocial Issues in ACHD Care

Neurocognitive Issues in ACHD Care

Director, Texas Adult Congenital Heart Program Division of Pediatrics & Pediatric Oncology Texas Children’s Hospital
Baylor St. Luke’s Medical Center
Associate Professor, Pediatrics & Internal Medicine Division of Cardiology
Baylor College of Medicine Houston, TX





My Healthy Heart: Empowering Young Adults with CHD to Manage Their Own Health Care

Nurse Practitioner, Cardiology Children’s National Health System Washington, DC







Case Based Learning: High Risk Pregnancy Management


Peripartum Cardiomyopathy

Professor of Medicine
Professor of Obstetrics and Gynecology Keck School of Medicine of USC University of Southern California
Los Angeles, CA



Pregnancy and Pulmonary Hypertension

Chief , Department of Cardiology MedStar Good Samaritan Hospital MedStar Union Memorial Hospital MedStar Heart & Vascular Institute Baltimore, MD



Anti-coagulation during Pregnancy

Medical Director, Philadelphia Ad ult Congenital Heart Disease Center Penn Medicine
Children’s Hospital of Philadelphia Philadelphia, PA

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Heart Failure: Part 1

Survival Prospects of Contemporary GUCH Patients: Is Heart Failure the New Threat?
Barbara Mulder, The Netherlands

mulder picBarbara JM Mulder is Professor of Cardiology in the Academic Medical Center in Amsterdam, the Netherlands. In 2001 she initiated the national registry and DNA bank for congenital heart disease, named CONCOR ( CONgenital CORvitia), in which presently over 16.000 patients have been included. She chaired the European Heart Survey on congenital heart disease with 79 participating centers from 24 countries.. From 2010 until 2012 she was president of the International Society of Adult Congenital Cardiology, ISACHD. At present, she is the president of the Netherlands Society of Cardiology


State of the Art of Heart Failure Treatment in GUCH Patients
Werner Budts, Belgium



Heart Failure: Ask the Experts: Part 2


How would you Treat this Patient?
Case Presenter: Matthias Greutmann, Switzerland
Expert Panel: Karen Stout, USA; John Deanfield, UK, Gruschen Veldtman, USA

Failing Fontan with Protein-Loosing Enteropathy

ccTGA with Moderate Tricuspid Regurgitation and Heart Failure

Pregnant CHD with Heart Failure



Rapid Fire Session: Therapeutic Innovations: Ready for the GUCH Patient


Subcutaneous ICD and Life Vest
Haran Burri, Switzerland



Leadless Pacing
Christof Kolb, Germany



TAVI for the Bicuspid Aortic Valve
Stephan Windecker, Switzerland



Percutaneous Repair of the Tricuspid Valve: On the Horizon?
Francesco Maisano, Switzerland



Assist Devices for the Failing Systemic Right Ventricle
David Crossland, UK

Crossland photo


Overcoming Treatment Challenges in CHD-PAH Patients
Presentation and Discussion of Two Challenging Clinical Cases


Never Too Old to be Treated?
Dr. Alexandra C. van Dissel
Academic Medical Center, Amsterdam, The Netherlandsvan Dissel, alexandra photo



New Drug Therapies for GUCH Patients


Angiotensin Receptor-Neprilysin Inhibitors in Heart Failure from CHD
Karen Stout, USA




Barbara Mulder, The Netherlands



Pulmonary Vasodilators in Fontan Patients
Maurice Beghetti, Switzerland



Can we use the New Pulmonary Vasodilators also in Eisenmenger?
Gerhard Diller, Germany



Oral Anticoagulation: In Whom, When and How?


Stroke in Adults with CHD: Incidence and Cumulative Risks
Sara Thorne, UK



Can we use CHADS-VASC and HAS-BLED Scores to Risk Stratify GUCH Patients
Jolien W. Roos-Hesselink, The Netherlands


Which GUCH Patient with IART Needs Long Term Anticoagulation
Judith Bouchardy, Switzerland



Which Adult Fontan Patient Needs Anticoagulation
Gruschen Veldtman,



Which Cyanotic Patient needs Anticoagulation
Erwin Oechslin, Canada

Oechslin December 2008 picDr. Erwin Oechslin is Professor of Medicine at the University of Toronto and Director of the Adult Congenital Heart Disease Program, located at the Peter Munk Cardiac Center, University Health Network, Toronto, Canada.

Dr. Erwin Oechslin was born in Einsiedeln (Switzerland) and graduated from the University of Zurich. After completion of his training in internal medicine and adult cardiology, he dedicated his education to congenital heart disease, which included one year training in pediatric cardiology at the Hospital for Sick Children in Zurich (Switzerland) and a two-year fellowship in Adult Congenital Heart Disease under the supervision of Dr. Gary Webb, Toronto. He returned to the University of Hospital of Zurich in 1998 and restructured the Adult Congenital Heart Disease Program.

He moved to Toronto, Canada, in 2006 and succeeded Dr. Gary Webb as Director of the Adult Congenital Heart Disease Program. He holds the Bitove Family Professorship of Adult Congenital Heart Disease and serves as staff physician in the echo laboratory. He is President of the International Society of Adult Congenital Heart Disease (www.isachd.org) and Past-President of the CACH Network (www.cachnet.ca). He is married to Doris and has three daughters.



Jane Somerville Lecture


The Olympic Spirit in GUCH
John Deanfield, UK


Rapid Fire Session: Difficult Questions in Simple Lesions



A Surgically Closed ASD II in Childhood: Completely Corrected?
Alexander Kadner, Switzerland




Hypertension in Repaired Coarctation: When to Intervene and How to Treat?
Andreas Eicken, Germany



Family Screening in Bicuspide Aortic Valves: Really Necessary?
Julie De Backer, Belgium




Marfan = Sartan?
Romy Franken, The Netherlands




RCA from the Left Coronary Sinus: Who needs Surgery?
René Pretre, Switzerland




The Dilated PA: Is there a Risk of Dissection?
Pastora Gallego, Spain





Bicuspid Aortic Valve: Operate Every Aorta at 5 cm
Pro: Alessandro Giamberti, Italy
Con: Markus Schwerzmann, Switzerland




Every Fallot with Severe Pulmonary Regurgitation needs a New Valve
Pro: Werner Budts, Belgium
Con: Matthias Greutmann, Switzerland


Rapid Fire Session: Simple Questions in Complex Lesions


Everything is Good in Arterial Switches?
Daniel Tobler, Switzerland




I’m a Fontan Patient and want to get Pregnant: Any Concerns?
Lorna Swan, UK




The Adult Fontan Patient with Suspected Hepatic Fibrosis: Do we need Liver Biopsies?
Gruschen Veldtman, USA




Low-Flow Low-Gradient Pulmonary Stenosis in Repaired TOF: Fact or Fiction?
Helmuth Baumgartner, Germany




TPV Options for RVOT Patients


Melody TPV: Past, Present and Future
Dr. Andreas Eicken, Germany




GUCH: Technical Options & Solutions
Prof. Oliver Kretschmar, Switzerland




Living with a Heart Defect


Prescribing PDE-5-Inhibitors for Erectile Dysfunction: Safe in GUCH Patients?
Gerhard Diller, Germany



Lets Talk about Sex
Claudia Franke, Germany




Piercing and Tattoos: A Threat for our Patients?
Philip Moons, Belgium




Depression and Suicide among GUCH Patients: Never Heard of?
Adrienne Kovacs, USA



Sports and GUCH


Competitive Sport with a Dilated Aorta: Really Dangerous?
Christian Schmied, Switzerland




Sudden Cardiac Death in GUCH Patients during Activity: Who is Really at Risk?
Dipen Shah, Switzerland



I want to Dive with my Heart Defect: Any Concerns?
Martin Kraus, Switzerland



The New ACC Recommendations for Competitives Athletes with CHD: Sense or Nonsense?
Harald Gabriel, Austria



Closing Session: Best Abstract Awards


Third Prize – Short Presentation by Winner: High Pulmonary Wedge Pressures Independently Predict Atrial Fibrillation in Patients after Trans-Catheter Closure of Atrial Septal Defect
Lukas Mark Meier, Canada




Second Prize – Short Presentation by Winner: Collagen Turnover Biomarkers and Systemic Right Ventricle Remodeling in Adults with Previous Atrial Switch Procedure for Transposition of the Great Arteries
Magdalena Lipczynska, Poland 




First Prize – Short Presentation by Winner: Characteristics and Outcomes of Heart Failure-related Hospitalization in Adults with Congenital Heart Disease
Magalie Ladouceur, France

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ACHD Guidelines

ESC GUCH guidelines 2010 

CCS ACHD guidelines 2009

ACC/AHA ACHD guidelines 2008

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